Our mission: To raise public awareness of the birth defect of Congenital Diaphragmatic Hernia and to generate support and provide assistance to families impacted by CDH in the Pacific Northwest. 

Congenital Diaphragmatic Hernia (CDH)
is a congenital malformation (birth defect) of the diaphragm. The most common type of CDH is a Bochdalek hernia; other types include Morgagni hernia, diaphragm eventration and central tendon defects of the diaphragm. Malformation of the diaphragm allows the abdominal organs to push into the proper lung formation.

CDH is a life-threatening pathology in infants, and a major cause of death due to two complications: pulmonary hypoplasia and pulmonary hypertension. Experts disagree on the relative importance of these two conditions, with some focusing on hypoplasia, others on hypertension. Newborns with CDH often have severe respiratory distress which can be life-threatening unless treated appropriately.

The three types of CDH, are illustrated below:

"The wide, flat muscle that separates the chest and abdominal cavities is called the diaphragm. The diaphragm forms when a fetus is at 8 weeks’ gestation. When it does not form completely, a defect, called a congenital diaphragmatic hernia (CDH), is created. This is a hole in the muscle between the chest and the abdomen." UCSF Fetal Treatment Center

Free UCSF iBook

This patient guidebook is a free educational resource for families with a child who has Congenital Diaphragmatic Hernia (CDH). It includes text, illustrations and multiple videos on:

  • What is CDH?
  • Prenatal Diagnosis
  • Pregnancy & Delivery Management
  • Prenatal Fetal Intervention
  • After-Birth Surgical Repair
  • Long Term CDH Complications
  • Home Care
  • Support Resources
  • Common Medications
The guidebook is written and produced by the faculty and staff of the University of California, San Francisco (USCF) Pediatric Surgery

Make A Donation

The Ladybug CDH Foundation is a 501(c)3 non profit organization under a group exemption and all donations are tax-deductible. We will send you a receipt for tax purposes and any amount is greatly appreciated.

Mail checks to:

  Ladybug CDH Foundation
  P.O. Box 25803
  Portland, Oregon 97298


~ Logo/Ladybug Design by Kim DiStefano - Thank You! ~